Wednesday, May 5, 2010


The past three weeks have been rough in the Lyme department.

Sleep is still giving me a hard time. I thought it was making a turn for the better (cycling back to normalcy) when two nights in a row I fell asleep quickly and with extreme exhaustion. But now I'm back to where I've been. So I'm trying to figure out the best balance to ensure a good night's sleep.

I hate sounding like I'm whining but my knees and legs have been hurting so bad. Especially my knees. There've been a couple times where I thought I was going to fall because my left one just gave out. Tonight they're especially hurting because I spent my day on a concrete floor. Never a good idea.

My mom and I have been discussing the effect of altitude on Lyme Disease. Her doctor has told her that higher altitude is a friendly environment for the bacteria because of the lower levels of oxygen in the blood. Deductive reasoning would lead one to believe that changing to a lower altitude would cause a reaction in Lyme victims.

A reaction, indeed. Ugh.

A big frustrating thing right now is my brain. It's like - I know I have knowledge in my head but retrieving it sometimes is not possible. And then I just look like an idiot when I start to contribute to the conversation and realize I'm not retrieving the information I need to finish my sentence.

So tonight I am tired and I'm hoping I can sleep. Hope for me! :)

1 comment:

  1. I just want you to know that I am so proud of you! It is a very difficult journey that you have walked through this disease and having the honor of being there for most of it, I am just so proud. I know that the purpose of this blog is to encourage others who have had to partake of this trying journey and to give them the same freedom to share the darkness that can accompany any disease. What a gift! I understand the pain and the battles you face and I admire your great courage and strength in each one. You NEVER complain, you do NOT let this disease steal your ability to constantly press forward and you SOMEHOW always keep a smile even in the long nights and longer days at times. Sometimes, I must say, I think that you are way too hard on yourself and don't give yourself the grace you so graciously extend to many, many others in most every area of your life. I remember the months you spent at the gym, completing the "Ultimate Body Challenge" two times in a row with great success. You have always been my child that I would comment on your endless energy and determination in life...and how I LOVED to see life through your eyes because it gave a perspective that most people often miss! That remains true to this day....but I've watched this disease ravage your body, destroying parts of you that took some of that control out of your hands and yet you still handled it with such grace and courage! My outdoorsy, rough and tumble girl who was unafraid to face an adventure, scale every mountain and climb to the highest branch of every tree we encountered and who I said over and over and over, "She will never have problems with her weight because she doesn't stop long enough for it to stick!" has been thrust into battles in that area that could have kept a less confidant and self assured person down! How difficult that has had to be for you! I just want you to know that my heart is so full of joy and your life so blesses me....I am DAILY amazed at the amazing person that you are! Wow, I am so privileged to be your mother and to call you my friend!